Clare Aontú Representative June Dillon Calls for National Haemochromatosis Testing Programme, Advocating for Early Diagnosis and Comprehensive Care
Clare Aontu Representative June Dillon has issued a strong call for the implementation of a national testing programme for haemochromatosis in Ireland, highlighting the urgent need for early detection and treatment of this condition.
Haemochromatosis, often referred to as “iron overload disorder,” can lead to serious health complications if left untreated, including liver damage, heart problems, diabetes, and arthritis. However, early diagnosis through a simple blood test can prevent these outcomes and significantly improve patients’ quality of life.
Knowing someone who has haemochromatosis, she says that given Ireland has one of the highest incidences of this genetic disorder in the world, this makes a testing campaign all the more important.
Ms. Dillon said: “People are suffering for years without knowing why. Early symptoms include fatigue, joint pain, weakness and weight loss but can progress in complexity if left untreated. Once tested, at least people can know the reason for their problems and develop a medical plan. Crucially family members such as siblings can go and get tested, and diagnosed, accessing the help they need. Genetic testing of family members offers a full picture and enables healthcare providers to manage haemochromatosis in its early stages, reducing the burden of severe complications and improving long-term outcomes.”
Any testing programme would not only test individuals but also extend to relatives of diagnosed patients, offering a comprehensive view of the condition’s prevalence and allowing for early intervention.
“This is an investment in our future. Prevention is always better than cure, and with haemochromatosis, early detection is the key to prevention. Ireland’s genetic makeup places its population at a significantly higher risk for haemochromatosis than many other countries, making this programme essential.
I am urging this government to prioritise funding and resources for a nationwide haemochromatosis testing initiative. Not only would it save and improve lives, it would also alleviate the long-term pressure on healthcare services which as we all know are creaking under the strain,” she added.